April 23, 2013
Painful Channelopathies Study’ seeks participants: A new EM research study in London, England, is recruiting volunteers with inherited EM. See what EM research, including clinical trials, is now under way on a new “Research Studies” page you can find by letting your mouse hover over “Research.” 

April 22, 2013
Facial EM: Learn more about this relatively rare symptom by reading Meg Edelson’s moving account in “Member Stories.” Sign in to your TEA account and click on Member Stories in the menu.  If you are not a member, become a member today.

April 20, 2013
Artist featured in the news: Heidi Grein, artist and TEA member was featured in media outlets throughout eastern Canada in February. She is among the winners of last year’s Paint Your Pain contest. You can read the story by clicking on “In the News” in the menu above – it is the first story listed.

April 10, 2013
Qutenza treatments show promise:  How high-dose capsaicin patches are helping some people with EM is explained in write-up authored by Elisabeth Antoine, freelance writer and TEA member. Click here to read the write-up.

April 5, 2013
TEA Member Fundraiser:  TEA member who wishes to remain anonymous describes the way she used her passion for plants to help support TEA's mission - click on Member Fundraisers in the menu above to read more.

TEA Seeking New Board Members:  TEA is very fortunate to have several dedicated and talented board members that work together as a team throughout each month to maintain and improve the education and awareness so necessary to the EM community.  However, we continue to seek capable and committed individuals to serve on TEA’s all-volunteer board.

If you have a great interest in supporting TEA and can meet via teleconference (from the comfort of your own home) for 2 hours one evening a month, please send an email with your name, address, phone number and a brief description of why you are interested in volunteering for TEA and what areas of experience/knowledge  you have had that will lend to your service on the board (i.e. web administration, grant-writing, governance, law, fundraising) to memberservices@burningfeet.org.

August 21, 2012

Winners of TEA's Art Contest Announced:  Artwork submitted by TEA members depicting the "pain of EM" will be used by the Yale Research team at a presentation at the annual Neuroscience Society Meeting this October.   Contest background, artwork and judges picks available now!  TEA Art Contest background and results

The Erythromelalgia Association has as its mission to identify, educate, and support those suffering EM’s painful symptoms; to help fund research leading to a cure for this rare disorder; to raise public awareness of EM; and to educate healthcare practitioners to recognize and diagnose EM. TEA places a special emphasis on helping identify, educate, support and assist those individuals who do not have access to the Internet. Because most physicians are NOT familiar with erythromelalgia symptoms and/or treatment there is a great need to educate the medical community as well.

DISCLAIMER:  The material on this website is for informational purposes only. It does not replace the advice or counsel of a doctor or health care professional. You should consult with, and rely only on the advice of, your physician or health care professional.