December 1, 2014
Erythromelalgia used as introduction in major online magazine article: The article found on AmericanScientific.com is about the discovery of molecular pathways specific to pain has revealed new targets for drug development. Read the article now: Pain That Won't Quit.
October 15, 2014
Tufts & Astrazeneca Looking for Post Doc Candidates for EM Research: Erythromelalgia has gained the attention of researchers at a Boston university and a large pharmaceutical company. See this posting for a post doc position recently found on LinkedIn.com.
October 15, 2013
Pfizer Neusentis completes clinical trial: Pfizer Neusentis (a research unit of Pfizer) has recently concluded a clinical trial in subjects with inherited EM (IEM) with the research unit’s novel sodium channel blocker. (Please click here for further explanation of the benefits of IEM research for the entire EM community). Full results of the trial will be published in due course.Prior to this trial, Pfizer conducted an “enabler” study in collaboration with Prof Steve Waxman and his group at Yale University. The “enabler” study was a non-drug investigation involving IEM patients that provided information about the history of the disease and helped create a more informed drug study that took place after the “enabler” study.Pfizer Neusentis also took donated blood samples from some IEM patients to begin cutting edge experiments to provide greater understanding of the sensory nerves in EM and how they are different from “non-affected” individuals.Click here to see full memo from Pfizer Neusentis Chief Scientific Officer, Dr. Ruth McKernan, explaining the studies and experiments in a bit more detail and expressing thanks to the EM community for their support in this work.
August 19, 2013
Orphan Drug Status for Xenon/Teva Drug: The FDA recently granted orphan drug designation to TEVA and Xenon Pharmaceuticals Inc. for their pain management candidate, XEN402. Orphan drug status was granted for the treatment of pain associated with erythromelalgia (EM). XEN402 is in a phase II study for a variety of pain-related disorders. XEN402 is being studied in both topical and oral forms. A phase II trial on topical XEN402, which evaluated its effectiveness in reducing pain related to post herpetic neuralgia, showed statistically significant data. Source: www.nasdaq.com
July 1, 2013
Like us on Facebook! TEA has a Facebook page, which you can follow to stay on the frontline of EM treatment and research and help raise awareness of our rare disorder. Click this link to "like" TEA's page www.facebook.com/erythromelalgia
Winners of TEA's Art Contest Announced: Artwork submitted by TEA members depicting the "pain of EM" will be used by the Yale Research team at a presentation at the annual Neuroscience Society Meeting this October. Contest background, artwork and judges picks available now! TEA Art Contest background and results