September 1, 2016
Change in TEA's membership structure: TEA will move from an annual renewal membership structure to a one-time, initial membership donation model on September 1st. The articles library, newsletter archives and listing of member recommended doctors will now be available to the general public, as TEA meets the needs of the EM community and realizes that we are navigating a world where free information abounds. Follow this link for details of changes and preserving member directory privacy. TEA will not be requesting membership renewal donations this year for the first time ever! However, we are hoping that members, previous donors and friends will still take the time to donate to TEA now!
April 17, 2016
Patient Guide is here: TEA's A Patient Guide to Erythromelalgia is here!! We have posted it as a PDF for your use as an educational and awareness tool for yourself, family and friends and your health care provider. Click here: Patient Guide! You can also order a hard copy of the Guide for a small donation to cover mailing costs.
March 3, 2016
EM highlighted in pharma company video: A pharma company has released a video outlining that the company's "discovery team employed creative science and unconventional tools in an effort to transform genetic insights into new potential therapies for pain". The video includes conversations with a TEA member and Stephen Waxman, MD, PhD - The Passionate Pursuit of Nav 1.7
January 23, 2016
TEA mourns the loss of Jay S. Cohen, MD: TEA mourns the loss of founding member Jay S. Cohen, M.D., who died Dec. 6, 2015. Dr. Cohen served on TEA’s original board of directors as Medical Consultant shortly after TEA’s founding in 1999 and became Chairman of the Medical Advisory Board after it was formed in 2001, a position he retained until his death. Dr. Cohen counseled many TEA members by phone and email throughout the years and conducted a very successful TEA-sponsored teleconference “Dr. Cohen on EM” in 2006. He wrote “Current Information on Treating Erythromelalgia,” in 2002, an article made available to the members TEA and revised several times in the next ten years.
Dr. Cohen was a nationally respected expert on prescription medications and natural therapies. His training and interest in pharmacology led to independent research on the causes of medication side effects that result in more than 100,000 deaths and 2 million hospitalizations each year. He noted that a substantial number of people are medication-sensitive, and starting in 1996, published his findings in eight books and medical journals.
Dr. Cohen's work will continue through the Jay S. Cohen, MD Foundation supported by his book sales and donations. To donate to the Foundation, follow this link: jaycohenmd.com. To make a donation to TEA in Jay's memory, follow this link: http://www.erythromelalgia.org/Donate.aspx and click on "In Memoriam" under donation options - acknowledgments will be sent to his family c/o the Foundation.
December 31, 2015
25 year old Michigan woman with EM covered in many media outlets: Awareness of EM spread with the story of a young woman's experiences dealing with constant burning pain since she was a child. Here is the story as it appeared in Barcroft Media based in the UK: I am Burning Alive: Girl Suffers from Rare Condition. The story was also covered by UK version of the Huffington Post and Cosmopolitan.
January 1, 2015
Pfizer reports EM research findings at pain conference: Pfizer Neusentis, a UK-based research division of the global pharmaceutical company, presented findings from two 2013 studies at a recent meeting of the International Association for the Study of Pain. One study of five people with inherited EM found most responded well to an experimental drug and experienced less heat-induced pain on days when they received the drug compared to when they received a placebo. Performed at the Pfizer clinical research unit in New Haven, CT, U.S., the study was made possible by the collaboration between Pfizer and the Yale research group led by Stephen Waxman, M.D., Ph.D., according to Ruth McKernan, M.D., Chief Scientific Officer at Neusentis. Full article.
December 1, 2014
Erythromelalgia used as introduction in major online magazine article: The article found on AmericanScientific.com is about the discovery of molecular pathways specific to pain has revealed new targets for drug development. Read the article now: Pain That Won't Quit.
July 1, 2013
Like us on Facebook! TEA has a Facebook page, which you can follow to stay on the frontline of EM treatment and research and help raise awareness of our rare disorder. Click this link to "like" TEA's page www.facebook.com/erythromelalgia
Winners of TEA's Art Contest Announced: Artwork submitted by TEA members depicting the "pain of EM" will be used by the Yale Research team at a presentation at the annual Neuroscience Society Meeting this October. Contest background, artwork and judges picks available now! TEA Art Contest background and results