April 18, 2012
TEA Announces "Paint Your Pain Contest":  Have you ever wanted to express how you feel about having EM through a painting, drawing or other form of artistic expression?  Now is the chance to do so!  Click here to get the details!

January 2, 2012
Xenon Pharmaceuticals Recruiting for Clinical Trial:  A clinical trial is underway that will examine the safety and effectiveness of an investigational medication for the treatment of pain from Erythromelalgia.  If you have Primary or Inherited EM, you may be able to participate.  Click here to read the details.

August 23, 2011
A Message from Yale University School of Medicine:  We greatly appreciate the interest that people with EM have shown in volunteering for our research.  As a clarification to TEA members about our patient recruitment efforts to study EM, we are at the moment enrolling the following two patient groups in our research studies:

1. Families in which two or more individuals have EM in more than one generation (Inherited EM).
2. People with early-onset EM, i.e., individuals with EM whose symptoms developed during their first 10-15 years of life.
   
   Individuals with inherited EM or early-onset EM who meet the above stated criteria, and are interested in volunteering in our research, may contact us at: neuropathicpain@yale.edu. 

Please note that we are profiling DNA from the above two groups of EM sufferers as part of our research program at Yale.  Because this is a research program and not a clinical service, we are prohibited from disclosing the results of DNA profiling to patients. DNA profiling is very effort-intensive and we are therefore unable to study patients with non-inherited EM and patients with adult-onset EM at this time.  We do however want the entire EM community to know that we are highly committed to finding more effective treatments for all people with EM.

The Erythromelalgia Association has as its mission to identify, educate, and support those suffering EM’s painful symptoms; to help fund research leading to a cure for this rare disorder; to raise public awareness of EM; and to educate healthcare practitioners to recognize and diagnose EM. TEA places a special emphasis on helping identify, educate, support and assist those individuals who do not have access to the Internet. Because most physicians are NOT familiar with erythromelalgia symptoms and/or treatment there is a great need to educate the medical community as well.