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About TEA

The Erythromelalgia Association (TEA) is an international, all volunteer, nonprofit organization that provides educational and networking services online and offline; raises public awareness of erythromelalgia, and helps fund research into this rare disorder. Founded in 1999, TEA is funded entirely by donations, and is a member of the National Organization of Rare Disorders.  All functions of the organization are carried out by the volunteer Board of Directors.  TEA also has a Medical Advisory Board (MAC) as required to be a member association of the National Organization of Rare Disorders.  TEA is proud to have gathered a group of prestigious and dedicated researchers and physicians to serve as advisors to the organization.


To help underwrite our programs and services we rely on contributions from members, grateful patients, their families, concerned individuals, small businesses, and foundations. Through this combined generosity, we are rendering comprehensive information and networking services for our members online and offline that no other agency in the world is providing. Our current membership base extends into 17 countries worldwide. To make a contribution to TEA click on Donate in the menu above.

Research Support

Helping fund research that will lead to new treatments – and eventually a cure – has been a goal since the founding of TEA in 1999. Medical research is enormously expensive, but TEA has succeeded in helping fund extremely encouraging research being done by scientists at very highly regarded universities. More information on EM research is available to TEA members. Just log in, click on "articles" at the top of the page and go to "research" on the menu on the left. If you are not a member, you can register now to access the information.

Click here to view and print The Erythromelalgia Association's brochure to take to your doctor.