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January 1, 2015
TEA is currently recruiting new volunteer board members - we need YOUR HELP to keep TEA strong and helping others. Do you have experience in any of the following: website content writing, other professional writing (articles for newsletter), development (cultivating relationships with contributors and seeking new funders); online grantwriting; accounting (bookkeeping and 990 preparation). Must also support the mission of TEA and be able to work well as a team member with our other volunteer board members via email and phone. Needs to be willing to make a commitment of at least 2 hours per week. Please send your resume via email to board President, Beth Coimbra at teaboardrecruiting@gmail.com

January 1, 2015
Pfizer reports EM research findings at pain conference:  Pfizer Neusentis, a UK-based research division of the global pharmaceutical company, presented findings from two 2013 studies at a recent meeting of the International Association for the Study of Pain. One study of five people with inherited EM found most responded well to an experimental drug and experienced less heat-induced pain on days when they received the drug compared to when they received a placebo. Performed at the Pfizer clinical research unit in New Haven, CT, U.S., the study was made possible by the collaboration between Pfizer and the Yale research group led by Stephen Waxman, M.D., Ph.D., according to Ruth McKernan, M.D., Chief Scientific Officer at Neusentis. Full article.

December 1, 2014
Erythromelalgia used as introduction in major online magazine article:  The article found on AmericanScientific.com is about the discovery of molecular pathways specific to pain has revealed new targets for drug development.  Read the article now:  Pain That Won't Quit.

October 15, 2014
Tufts & Astrazeneca Looking for Post Doc Candidates for EM Research:  Erythromelalgia has gained the attention of researchers at a Boston university and a large pharmaceutical company.  See this  posting for a post doc position recently found on LinkedIn.com.

August 19, 2013
Orphan Drug Status for Xenon/Teva Drug:  The FDA recently granted orphan drug designation to TEVA and Xenon Pharmaceuticals Inc. for their pain management candidate, XEN402. Orphan drug status was granted for the treatment of pain associated with erythromelalgia (EM).  XEN402 is in a phase II study for a variety of pain-related disorders. XEN402 is being studied in both topical and oral forms.  A phase II trial on topical XEN402, which evaluated its effectiveness in reducing pain related to post herpetic neuralgia, showed statistically significant data. Source:  www.nasdaq.com 

July 1, 2013
Like us on Facebook!  TEA has a Facebook page, which you can follow to stay on the frontline of EM treatment and research and help raise awareness of our rare disorder. Click this link to "like" TEA's page www.facebook.com/erythromelalgia

August 2012


Winners of TEA's Art Contest Announced:  Artwork submitted by TEA members depicting the "pain of EM" will be used by the Yale Research team at a presentation at the annual Neuroscience Society Meeting this October.   Contest background, artwork and judges picks available now!  TEA Art Contest background and results

 

The Erythromelalgia Association's Mission

The Erythromelalgia Association is an all-volunteer, international, nonprofit organization that works to identify, educate and support all those whose lives are affected by erythromelalgia (EM).  We spread awareness of EM by providing educational resources about this rare disorder to the public and to those who diagnose and treat EM, and we raise funds to further meaningful research efforts.

 

DISCLAIMER:  The material on this website is for informational purposes only. It does not replace the advice or counsel of a doctor or health care professional. You should consult with, and rely only on the advice of, your physician or health care professional.

 
 

 

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