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In the News

News relating to EM, pain treatment and research
has been published/reported in the following articles:

Doctors Thought It Was a Simple Foot Infection. They were so wrong.  Maryland woman wondered why her feet were so hot in January.  Full story in the Washington Post,  August 21, 2016.

Newly Identified Compounds in Spider Venom Could Help Treat Chronic Pain.  Spider venom contains peptides, some of these block Nav1.7 pain pathways - researchers are discovering methods to more quickly identify the species that contain such peptides.Mediacal News Today, March 4, 2015.

Relmada Therapeutics Selects MepiGel Formulations to Advance Into Clinical StudiesMepiGel, a topical dosage form of the local anesthetic mepivacaine, is being studied for the treatment of neuropathic pain.  PRN Newswire.  February 4, 2015.

Biogen Idec to Expand Neuropathic Pain Portfolio With the Acquisition of Convergence Pharmaceuticals, Biogen, Idec, Inc. Biogen to purchase Convergence to work on developing a Phase 2 Clinical Drug that uses a novel small molecule state-dependent sodium channel blocker that preferentially inhibits Nav 1.7 ion channel. January 2015.

Pfizer Releases EM Research and Experimental Drug Findings, Isabelle Davis, TEA Footsteps Newsletter.  One of two studies performed (a collaboration between Pfizer and Yale research team) included 5 patients with inherited EM that were given an experimental drug. December 2014

Sherwood Artist Shines Spotlight on Rare Disease Erythromelalgia, Elizabeth Antoine, Oregon Herald.  Laura Fisher's artwork sparks attention in patient support organiation's "Paint your Pain" art contest.  December 2012.

Girl on Fire - Ann Arbor Pioneer Hockey Player Lauren Chapman perseveres through rare disease, Kyle Austin, Ann Arbor News, 18 year old TEA member has her story of finding a diagnosis and continuing to pursue her interests,  February 16, 2014.

The Quest for Better Pain Relief, Jeanne Whalen, Scientists searching for better painkillers (Dr. Waxman, Yale, is quoted). Wall Street Journal, July 29, 2013.

Erythromelalgia - A Life of Fire and Pain, Elisabeth Antoine Crawford, TEA member's article appeared on's guest author page.

Painting Through the Pain, Lori Gallagher.  TEA member, Heidi Grein, is featured in her local newspaper for her participation in TEA's art contest (2012) and her experiences of living with EM. 

The Pain Gate, David Dobbs.  A rare disorder (erythromelalgia) brings insight into the nature of pain - includes conversation with TEA member, Pam Costa.  Scientific American Mind, April/May 2007

Scientists Discover Chronic Pain Gene (Reuters).  British scientists have identified a gene responsible for regulating chronic pain, called HCN2, and say their discovery should help drug researchers in their search for more effective, targeted pain-killing medicines.

Genetic switch discovered that turns on pain, MacKenzie, Alasdair, News Details, Communications Team, Office of External Affairs, University of Aberdeen, Kings College, Aberdeen, Dec. 21, 2010. Researchers have discovered a "switch" that turns on a gene that lets us feel pain, in a finding that could be a step towards the development of new painkilling drugs.

Hurt Blocker, Ehrenberg, Rachel, Science News, June 30, 2012, Vol. 181.  The next big pain drug may soothe sensory firestorms without side effects.  Discusses new information on Nav1.7.

The one-size dose does not fit all. Cohen Jay. Newsweek December 6,1999. Physicians and patients should look beyond the guidelines recommended by drug manufacturers.

Rare discorder keeps woman off her feet.  TEA president is interviewed by local newspaper - Wilmington News Journal, In-Sung Yoo, 2006.